I was just diagnosed with this evil thing. I had no idea it was like this. It started a year ago after I broke my leg, and about the time the infection I developed from the surgery popped up, a couple of months after the initial operation.
So, I’m just on a fact finding mission and to hear how others might cope with this. I finally went to the specialist and he prescribed Plaquenil (Hydroxychloroquine).
I don’t think I can do this medicine. It has major side affects with one being sudden blindness! For real. I hate one pill a day for life drugs and haven’t even tried this one, not even the first pill.
I went online to Web MD and read real life reviews, and what I took away from it was to run as fast as you can from this medication. It ranged from death to irreparable blindness without warning, and a whole gaggle of bad side effects in between.
I hear there are other methods of medicine but I haven’t gotten that far yet.
I’d ideally like to think I could find some sort of natural plan but I understand this is a nasty illness with no cure.
Anyone with tips or just stories, please feel free to post them up. It may even help other people that don’t understand what’s happening to them. This is some painful stuff and it’s causing extreme fatigue and loss of appetite, too. It’s hard for me because I’ve always been active and I live alone making it worse.
Thanks for reading! I just need a little encouragement and talk with others who may have already been introduced to this nightmare.